Atención temprana centrada en la familia: confianza, competencia y calidad de vida familiar

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Patricia Subiñas Medina
Pau García-Grau
Mónica Gutiérrez-Ortega
Irene León-Estrada

Resumen

La calidad de vida familiar (CdVF) es considerada el objetivo último de la intervención en Atención Temprana (AT) y un indicador de la calidad de estos servicios. La eficacia de los programas de AT debe objetivarse considerando este constructo junto con otros resultados familiares, además de los relativos al progreso del menor. A este efecto, el presente estudio analiza la CdVF y la confianza y competencia parental de 43 familias españolas de niños y niñas de 0 a 6 años en AT, y examina el rol predictor y mediador de la confianza y competencia parental en la CdVF. Se lleva a cabo un estudio transversal, correlacional y descriptivo. Las medidas utilizadas son la Everyday Parenting Scale (versión modificada) y la escala Con-Fam de competencia parental en AT. Asimismo, se utiliza la Escala de Calidad de Vida de las familias en Atención Temprana (FEIQoL). Los resultados indican una percepción aceptable de CdVF, así como de confianza y competencia parental de las familias. Existe una fuerte relación directa entre la confianza y competencia parental y la CdVF. Se encuentra que características de servicio de AT como un mayor número de profesionales se relacionan con una menor confianza y competencia parental, una peor percepción del funcionamiento del niño y, en consecuencia, menos CdVF. Se presentan implicaciones para futuros estudios y prospectiva para los servicios.

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Cómo citar
Subiñas Medina, P., García-Grau, P., Gutiérrez-Ortega, M., & León-Estrada, I. (2022). Atención temprana centrada en la familia: confianza, competencia y calidad de vida familiar. Psychology, Society & Education, 14(2), 39-47. https://doi.org/10.21071/psye.v14i2.14296
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Bailey, D. B., Mcwilliam, R. A., Darkes, L. A., Hebbeler, K., Simeonsson, R. J., Spiker, D., y Wagner, M. (1998). Family outcomes in early intervention: A framework for program evaluation and efficacy research. Exceptional Children, 64(3), 313-328. https://doi.org/10.1177/001440299806400302
Balcells-Balcells, A., Giné, C., Guàrdia-Olmos, J., y Summers, J. A. (2011). Family quality of life: Adaptation to Spanish population of several family support questionnaires. Journal of Intellectual Disability Research, 55(12), 1151-1163. https://doi.org/10.1111/j.1365-2788.2010.01350.x
Balcells-Balcells, A., Giné, C., Guàrdia-Olmos, J., Summers, J. A., y Mas, J. M. (2019). Impact of supports and partnership on family quality of life. Research in Developmental Disabilities, 85, 50-60. https://doi.org/10.1016/j.ridd.2018.10.006
Balcells-Balcells, A., Mas, J. M., Baqués, N., Simón, C., y García-Ventura, S. (2020). The Spanish family quality of life scales under and over 18 years old: Psychometric properties and families’ perceptions. International Journal of Environmental Research and Public Health, 17(21). https://doi.org/10.3390/ijerph17217808
Brown, R. I., MacAdam–Crisp, J., Wang, M., y Iarocci, G. (2006). Family quality of life when there is a child with a developmental disability. Journal of Policy and Practice in Intellectual Disabilities, 3(4), 238-245. https://doi.org/10.1111/j.1741-1130.2006.00085.x
Čagran, B., Schmidt, M., y Brown, I. (2011). Assessment of the quality of life in families with children who have intellectual and developmental disabilities in Slovenia. Journal of Intellectual Disability Research, 55(12), 1164-1175. https://doi.org/10.1111/j.1365-2788.2011.01400.x
Coleman, P. K., y Karraker, K. H. (2003). Maternal self-efficacy beliefs, competence in parenting, and toddlers’ behavior and developmental status. Infant Mental Health Journal, 24(2), 126-148. https://doi.org/10.1002/imhj.10048
Davis, K., y Gavidia-Payne, S. (2009). The impact of child, family, and professional support characteristics on the quality of life in families of young children with disabilities. Journal of Intellectual and Developmental Disability, 34(2), 153-162. https://doi.org/10.1080/13668250902874608
Dunst, C. J. (1999). Placing parent education in conceptual and empirical context. Topics in early childhood special education, 19(3), 141-147.
Dunst, C. J. (2010). Family capacity-building in early childhood intervention: Effects on parent and child competence and confidence [Ponencia]. Eight National Congress on Early Intervention with Young Children and Their Families. Asheville, North Carolina, USA.
Dunst, C. J., y Dempsey, I. (2007). Family-professional partnerships and parenting competence, confidence, and enjoyment. International Journal of Disability, Development and Education, 54(3), 305-318. https://doi.org/10.1080/10349120701488772
Dunst, C. J., y Masiello, T. L. (2003). Everyday parenting scale (modified version). Winterberry Press.
Dunst, C. J., Bruder, M. B., y Espe-Sherwindt, M. (2014). Family capacity-building in early childhood intervention: Do context and setting matter? School Community Journal, 24(1), 37-48.
Dunst, C. J., Hamby, D. W., y Brookfield, J. (2007). Modeling the effects of early childhood intervention variables on parent and family well-being. Journal of Applied Quantitative Methods, 2(3), 268-288.
Dunst, C. J., Trivette, C. M., y Hamby, D. W. (2006). Technical manual for measuring and evaluating family support program quality and benefits. Winterberry Press.
Dunst, C. J., Johanson, C., Trivette, C. M., y Hamby, D. (1991). Family-oriented early intervention policies and practices: Family-centered or not? Exceptional Children, 58(2), 115-126. https://doi.org/10.1177/001440299105800203
Dunst, C. J., Hamby, D., Trivette, C. M., Raab, M., y Bruder, M. B. (2000). Everyday family and community life and children’s naturally occurring learning opportunities. Journal of Early Intervention, 23(3), 151-164. https://doi.org/10.1177/10538151000230030501
Fernández Valero, R., Serrano, A. M., McWilliam, R. A., y Cañadas, M. (2017). Relación entre empoderamiento familiar y calidad de los servicios de atención temprana. Revista de Estudios e Investigación en Psicología y Educación, 11, 317-321. https://doi.org/10.17979/reipe.2017.0.11.3054
García-Grau, P. (2015). Atención temprana: modelo de intervención en entornos naturales y calidad de vida familiar. (Tesis doctoral no publicada). Universidad Católica de Valencia.
García-Grau, P., McWilliam, R. A., Martínez-Rico, G., y Grau-Sevilla, M. D. (2018). Factor structure and internal consistency of a Spanish version of the Family Quality of Life (FaQoL). Applied Research in Quality of Life, 13(2), 1-14. https://doi.org/10.1007/s11482-017-9530-y
García-Grau, P., McWilliam, R. A., Martínez-Rico, G., y Morales-Murillo, C. P. (2019). Child, family, and early intervention characteristics related to family quality of life in Spain. Journal of Early Intervention, 41(1), 44-61. https://doi.org/10.1177/1053815118803772
García-Grau, P., McWilliam, R. A., Martínez-Rico, G., y Morales-Murillo, C. P. (2021). Rasch analysis of the Families in Early Intervention Quality of Life (FEIQoL) scale. Applied Research in Quality of Life, 16(1), 383-399. https://doi.org/10.1007/s11482-019-09761-w
Giné, C., Vilaseca, R., Gràcia, M., Mora, J., Orcasitas, J. R., Simón, C., Torrecillas, A. M., Beltran, F. S., Dalmau, M., Pro, M. T., Balcells-Balcells, A., Mas, J. M., Adam-Alcocer, A. L., y Simó-Pinatella, D. (2013). Spanish family quality of life scales: Under and over 18 years old. Journal of Intellectual and Developmental Disability, 38(2), 141-148. https://doi.org/10.3109/13668250.2013.774324
Hayes, A. F. (2018). Partial, conditional, and moderated mediation: Quantification, inference, and interpretation. Communication Monographs, 85(1), 4-40. https://doi.org/10.1080/03637751.2017.1352100
Hayes, A. F., y Agles, R. A. (2014). On the standard error of the difference between independent regression coefficients in moderation analysis. Multiple Linear Regression Viewpoints, 40(2), 16-27.
Kunseler, F. C., Willemen, A. M., Oosterman, M., y Schuengel, C. (2014). Changes in parenting self-efficacy and mood symptoms in the transition to parenthood: A bidirectional association. Parenting, 14(3-4), 215-234. https://doi.org/10.1080/15295192.2014.972758
Mannan, H., Summers, J. A., Turnbull, A. P., y Poston, D. J. (2006). A review of outcome measures in early childhood programs. Journal of Policy and Practice in Intellectual Disabilities, 3(4), 219-228. https://doi.org/10.1111/j.1741-1130.2006.00083.x
McWilliam, R. A. (2010). Routines-based early intervention. supporting young children and their families. Paul H. Brookes.
McWilliam, R. A., y García-Grau, P. (2018). Confianza Familiar para Ayudar con el Funcionamiento del Niño en Rutinas y con el Funcionamiento Familiar (Con-Fam). The University of Alabama.
McWilliam, R., y García-Grau, P. (2017). Calidad de vida de las familias en atención temprana. Families in Early Intervention Quality of Life (FEIQoL). The University of Alabama.
McWilliam, R. A., García-Grau, P., Morales-Murillo, C. P., y Stevenson, C. (2021). Parrhesia regarding early intervention birth to five: Rethinking the order of things. Young Exceptional Children, 24(3), 124-137. https://doi.org/10.1177/10962506211019347
Rominov, H., Giallo, R., y Whelan, T. A. (2016). Fathers’ postnatal distress, parenting self-efficacy, later parenting behavior, and children’s emotional-behavioral functioning: A longitudinal study. Journal of Family Psychology, 30(8), 907-917. https://doi.org/10.1037/fam0000216
Sameroff, A. J. (1983). Development systems: Contexts and evolution. En P. Mussen y L. Carmichael (Eds.), . Handbook of child psychology: formerly Carmichael’s Manual of child psychology (pp. 237-294). Wiley.
Sameroff, A. J., y Chandler, M. J. (1975). Reproductive risk and the continuum of caretaking casualty. Review of Child Development Research, 4, 187-244.
Summers, J. A., Marquis, J., Mannan, H., Turnbull, A. P., Fleming, K., Poston, D. J., Wang, M., y Kupzyk, K. (2007). Relationship of perceived adequacy of services, family-professional partnerships, and family quality of life in early childhood service programmes. International Journal of Disability, Development and Education, 54(3), 319-338. https://doi.org/10.1080/10349120701488848
Summers, J. A., Poston, D. J., Turnbull, A. P., Marquis, J., Hoffman, L., Mannan, H., y Wang, M. (2005). Conceptualizing and measuring family quality of life. Journal of Intellectual Disability Research, 49(10), 777-783. https://doi.org/10.1111/j.1365-2788.2005.00751.x
Sloper, P., y Tuner, S. (1992). Service needs of families of children with severe physical disability. Child: Care, Health and Development, 18(5), 259-282. https://doi.org/10.1111/j.1365-2214.1992.tb00359.x
Tamarit Cuadrado, J. (2015). La transformación de los servicios hacia la calidad de vida. Una iniciativa de innovación social de FEAPS. Siglo Cero Revista Española Sobre Discapacidad Intelectual, 46(3), 47-71. https://doi.org/10.14201/scero20154634771
Turnbull, A. (2003). La calidad de vida de la familia como resultado de los servicios: El nuevo paradigma. Siglo Cero: Revista Española Sobre Discapacidad Intelectual, 34(207), 59-73.
Turnbull, y Turnbull. (2002). From the old to the new paradigm of disability and families: Research to enhance family quality of life outcomes. En J. Paul, C.D. Lavely, y Cranston-Gingras (Eds.), Professional issues in special education: Intellectual, ethical, and professional challenges to the profession (pp. 83-117). Greenwood Publishing Group.
Wang, M., y Brown, R. (2009). Family quality of life: A framework for policy and social service provisions to support families of children with disabilities. Journal of Family Social Work, 12(2), 144-167.
Wang, M., Turnbull, A. P., Summers, J. A., Little, T. D., Poston, D. J., Mannan, H., y Turnbull, R. (2004). Severity of disability and income as predictors of parents’ satisfaction with their family quality of life during early childhood years. Research and Practice for Persons with Severe Disabilities, 29(2), 82-94. https://doi.org/10.2511/rpsd.29.2.82
Wang, M., Mannan, H., Poston, D., Turnbull, A. P., y Summers, J. A. (2004). Parents’ perceptions of advocacy activities and their impact on family quality of life. Research and Practice for Persons with Severe Disabilities, 29(2), 144-155.
Zuna, N. I., Turnbull, A., y Summers, J. A. (2009). Family quality of life: Moving from measurement to application. Journal of Policy and Practice in Intellectual Disabilities, 6(1), 25-31. https://doi.org/10.1111/j.1741-1130.2008.00199.x
Zuna, N., Summers, J. A., Turnbull, A. P., Hu, X., y Xu, S. (2010). Theorizing about family quality of life. En R. Schalock, K. Keith, M. A. Verdugo, L. Gómez, y R. Kober (Eds.), Enhancing the quality of life of people with intellectual disabilities (pp. 241-278). Springer.